Extraordinary measures: what are the benefits to have such movies talking about Rare Diseases?

Summary of the Presentation: 

The title of the video elaborates itself … I think that this video needs no quote

Short Biography of the speaker:

Dr. Reem Alhammad (KSA)

Assistant professor of neurology

Neuromuscular consultant

Saudi board of neurology

Neuromuscular fellowship, Mayo clinic, USA

King Saud University college of Medecine